Overcoming Obstacles: The Van Blocking the Road

Love & support brings us together.Ink in the Wheels: Stories to Make Love Roll is out in the world! We were just overwhelmed by the support of our book release on February 8th. Truly, we are so humbled and honored that our family and friends celebrated with us- it was an evening we will never forget!! Read about our release event here!

The week following, we still had family in town, we were thrilled with an interview on The Breaking Free Show, and we spoke to several groups during the week.

Yet in the middle of all of our celebrations, the Engine Light came on in my little ’99 Honda Civic. Overall, my car has done so well with over 246,000 miles on it. But when it does need repair, it happens at the most inopportune times. The week we signed the mortgage for our house- $1,00 repair, the weekend we lost one of our dogs- $800 repair, just as we were rebuilding the foundation to the house- $900 repair. We knew with the high mileage that my car was only going to last another year or two. Still, we didn’t know how to begin the conversation about how to finance an accessible van.

Our goal professionally with the book is to positively impact individuals and families with and without disabilities, and we couldn’t be more excited that we are indeed reaching others and inviting them to share their own stories, inspiring others to reach beyond what they thought was possible, and bringing a new voice to the community.

And- our personal goals for the book, which are no secret, to purchase an accessible van and start the process for home study/adoption.

And this week we found that my little car needs more repairs than we could have expected. And so now we have a choice. We could drain all of our funds into repairs, or we can accept the inevitable and look toward an accessible van.

In our book, we become so vulnerable and open ourselves up to share our story and experiences. And so here, too, we won’t sugar coat it. Realizing that we must now make a decision with transportation- there is nothing we can do. The feeling of this news is like someone has ripped my skin off. I found myself in tears for several days, but it was not out of complete devastation. It was out of relief.

This is one of the biggest barriers to our ultimate goals of a national book tour (getting our book out into the world) and one of Barton’s goals in order to expand our family (creating an environment where Barton can be fully independent, wherever we go). And now, there is a van standing in the middle of the road.

And now, we must come face to face with it.

There is an opportunity to face one of our biggest challenges, and we can do it kicking or screaming, or we can move forward slowly with what we have, one step at a time, using a variety of strategies that will include the humbleness of asking for help and the hard work of reorganizing other plans to make sure we can be successful.

Honestly, we don’t know how we will get there. We have seven months (until my car needs an inspection) to figure out the details, namely the green dollar bills.

And while we are facing our elephant in the room, we will continue on our journey this year of planning a local, state-wide and national speaking engagement tour, coaching individuals and families, speaking to organizations, sharing our story as openly as we can, both the successes and failures. The joys and the challenges of our lives. We have seen how important this story is, as it has connected us with others in ways we could have not imagined. And so we will continue on because this vision is so vital.

With the van, we don’t know the how, but we know we will. And we will- together, just like we always have. And for now, that is all that matters.

~ Megan

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The Pages Dreams are Made of

Ink in the Wheels: Stories to Make Love Roll by S. Barton and Megan M. Cutter

Ink in the Wheels: Stories to Make Love Roll- It’s Here!!

When I was a little girl, I would write in my journal and hide it under my bed, and as a teenager hide notebooks in my locker at school. I always knew I would be a writer, and it would take years to claim myself as a writer even though I wasn’t “published.”

In my adult years, I would edit manuscripts, write articles and social media posts, facilitate writers groups, and coach writers one-on-one to find their own voice. Yet, there are projects that don’t sustain us financially, but are just as vital to work on. The words that we must write.

At first, Barton wasn’t fully on board with writing Ink in the Wheels: Stories to Make Love Roll. He wanted it to be more than just a sappy love story; he wanted it to serve a purpose, something that would impact the disability community in a way that hasn’t been reached before. And so we opened ourselves up even more, to include the depth and range of our experiences as a couple.

This Friday, we took another leap forward, as we received our first proof of Ink in the Wheels. The elation could be felt all throughout our house, and the anticipation ramped up when we passed two teasing UPS trucks circling our neighborhood. When it arrived, laughter echoed as we tore through the cardboard box.

We held our book in our hands, and it has been such a joy for both of us to flip through the pages, and to see our work in its tangible form. The hours, weekends and evening spent writing, transcribing, editing, and more editing finally have come to see their fruition.

Even still, the work is not over. Since it is a proof copy, we had a few things to change, and uploaded new files. We’ve begun planning for our first release event February 8th, which is going to be thrilling since all of of our family members will be present and so many of our friends and community members will join us in the celebration.

When we find ourselves exasperated and exhausted, we remind each other that it’s okay to rest, to take time to re-energize, and remind each other how far we have come and how close we are to realizing our dreams of impacting and inspiring others in the world.

Over the past few days, the proof copy has migrated from kitchen table to living room table, from hands to others skimming its pages, from an idea into a materialized paperback form.

And even though there is more to do, we can’t help but smile as we pass by.

~ Megan

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Illuminating Beauty

As Megan mentioned in her blog, the holidays can be a source of tenderness for her. Not only because of her mother’s passing, but like many of us, the whole complexities of family dynamics can cause added friction. This year, as is often the case, when Megan began feeling the onset of this tenderness, she began turning inward, trying to make herself invisible to the rest of her family.

Of course, after 8 years of marriage I have become accustomed to this pattern and how she feels invisibility is her best an often only defense. So, too have I become trained in understanding those final hints in body language that signal the onset of this attempted invisibility.

If ever you have loved someone as much as I love Megan, the last thing that you want is to let your love become invisible. Indeed, you are able to see all of the magnificence in occasions like this that they are unable to recognize within themselves. Such was the case with me this past Christmas.

When Megan began to take on her cloak of invisibility, I immediately felt the shift in her energy, behavior and I also noticed an energy shift in the room as a whole. To my surprise, no one else caught it at first. Perhaps because their attention was elsewhere or perhaps this was because this was the pattern that had developed over a long time in which Megan had grown up.

When I noticed this and asked Megan if she was okay, she immediately shrunk deeper into her invisibility, denying that anything was going on. As I noticed her attempting to avoid my questions, I asked again and once more she tried to deny her feelings, denying herself the space in which to express the well of emotions that was beginning to rise from her. I let it go for a few minutes knowing that trying to push harder would only end in disaster. Soon, I discovered the opportunity to approach it from a different angle. I knew she was not at a place where she felt comfortable expressing those feelings verbally.

Megan got up to refill my drink and when she returned I invited her to sit on my lap, where I could hold and caress her. Rather than sitting beside me, where she could collapse into herself, she settled into my lap. As I held her in my arms, her tension began to soften. Because of the way we were positioned, I was not able to see her face, but I suspect with the softening of her tension, some of the emotions that she had tried so hard to conceal began to show themselves.

I was not expecting what transpired next. From across the kitchen where we were all gathered in discussion, Megan’s father glanced over at us. It was the first time since Megan began feeling anxious that his eyes had passed our way. And in that moment, I witnessed a beauty that I had not seen between the two of them before. At first, he only noticed that I was holding Megan in my lap, but as he looked more closely, I saw his countenance shift as he realized the swell of emotions that was transpiring within Megan. He glanced at me as I held her, and in that silent acknowledgement understood my refusal to allow Megan to become invisible, forgotten.

My wife, his daughter so beautiful as she experienced her feelings; no longer in isolation, no longer forgotten or overlooked by her family, and as the conversation in the room shifted, he moved toward us and was able to acknowledge her verbally in a way that she had long denied herself to the point of forgetting.

This Christmas, I am Thankful for my wife, and for her courage not to become invisible.

~ Barton

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Inclusion Over the Holidays

Happy Holidays!

Happy Holidays!

This Christmas, we travelled down to see my family in Atlanta, GA. We had tried to travel for Christmas several years ago, but had to cancel because of a snowstorm that brought 8 inches of snow to NC. Sadly, when we did get to see my family for the weekend that February, our puppy got very sick while we were away and we had to put him down before arriving home. I cried the entire weekend.

So it was wonderful to be able to see family over Christmas without the drama of some big event. Although, we did delay our travel home by a day because of the storm front moving across the Southeast.

When we travel, I do help Barton a bit more, because we are out of our normal routine. What I loved, in particular, over this Christmas was how my dad was able to see Barton taking care of me as well. When I had a down moment of sadness (I tend to remember my mother most around Christmas time and can feel a little out of place), I sat on Barton’s lap. He rubbed by back and smiled, which helped me to let the moment pass.

And we were included in the fun, where my brother tricked my dad with a new phone. Of course, the one hour when my dad’s phone wasn’t working, and he lost it. So he started calling it to find it, but my brother had just made the switch of new phones, so his old phone wouldn’t work. We were accomplices, covering up my brother’s tracks, but because Barton especially has a tendency to laugh, a dead giveaway to any secret, we ended up quickly heading to bed.

I knew dad would be up all night. Taking after him, I too become really anxious when I lose my phone, keys… Christmas morning he had found his old phone but had now realized it wasn’t working. So he was still trying to figure it out. Finally we had to let him in. To see my dad’s surprise when he found his new phone ringing above the fireplace was priceless.

Returning home, we felt a sense of relaxation and the excitement of moving forward with our book release this next year. In the car, the conversation revolved around putting pieces together, before we settled into a contented silence.

As the new year approaches, we are so hopeful about the book release, possibilities of work and service, and moving forward on dreams we still have for our family.

Many wishes for a warm and blessed holiday!!

~Megan

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Holding Our Community Closer

As a nation and as a community, we are shocked and saddened at the events that unfolded last week in Newtown Conn. We are wondering how such an evil act could have happened, why it happened to our children, in our schools. We are grieving with these parents who have lost their children. As a nation, we held our children closer, wondering how to talk with their children about the tragic events. While Barton and I don’t have children, we were just as affected. The events were made closer to me when I found out one of the children whose lives was lost was the daughter of a RMWC alum.

I also found myself in a barrage of information hitting the social media waves. After the Tuscaloosa tornado, social media was used to find those I was trying to see if they were okay, to get help to those who needed it the most, what supplies were needed. But intermixed with the inspirational messages and condolences over this weekend, were points and discussions on gun control, safety in schools, people with mental health illness, people with Autism or learning and developmental disabilities, those with behavioral problems. Even The Autism Society was quick to put out a statement to try to calm some of the stereotypes being made. Our reaction was made immediate.

And I stepped back, where did I fit into this picture, with all of these sides leading to banter back and forth on the Internet waves? Barton and I found ourselves more emotional, sensitive and irritated over the weekend. How much were we picking up on the ripples of emotion that emanated from all of these events, perspectives and arguments?

Certainly hearing such a profound sense of loss takes me back to the unexpected death of my mother, who passed away due to a reaction from a medication now recalled by the FDA. I asked why over and over again with no answers and took those first steps after deep grief and loss.

Friday night, Barton mentioned an article, “They have come for our children,” which talked about harm being done to international children, and how we are all connected, no matter where we are. We also talked about our community, how the impended “doom of 12/21/12” or downfall of our society could be created by those who believe it will happen so much they will create it and take others with them. How do we come through these events with our faith and belief intact?

In one of our communities, the basic foundation of belief is that nothing must be done to harm the children. And last week, we have lost our children in the most tragic of ways. We gather in our churches or spiritual communities, in our social groups and we can come together to support one another.

For our local community of writers, poets and musicians in the Triangle Area:Eban Crawford and Alice Osborn are organizing a benefit Open Mic on Thurs Jan 3rd from 6:30-9pm at Pick A Class in downtown Wake Forest to help the victims of this tragedy. Contact Alice Osborn if you are interested in participating.

This was a poem that was posted on a FB page, and was a great reminder.

We need to stop.
Just stop.
Stop for a moment…
Before anybody
Says or does anything
That may hurt anyone else.
We need to be silent.
Just silent.
Silent for a moment…
Before we forever lose
the blessing of songs
That grow in our hearts.
We need to notice.
Just notice.
Notice for a moment…
Before the ashes and dust of humility.
Stop, be silent and notice….
We need to be.
Just be.
Be for a moment…
Kind and gentle, innocent and trusting.
Like children and lambs,
Never judging or vengeful
Like the judging and vengeful.
And now, let us pray,
Differently, yet together,
Before there is no earth, no life,
No chance for peace.

Written by 11 year old Mattie J.T. Stepanek (1990-2004), who lived and struggled with Muscular Dystrophy.

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