Tag Archives: disability self advocacy

When is it Time to Ask for Backup

We thought about taking all of it on ourselves, but realized this would not give us results. When a few fundraising opportunities didn’t work out, we started to look at our values, and how we could best include them in meeting our goals. Community is the focus of our vision. It is very important to us to support our community, and more than once we have needed our neighbors’ help. Continue reading

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When Help Just isn’t Working: Letting Go Our Personal Care Assistant

  So today was not a fun day. We had to have a discussion with Barton’s morning personal care assistant, and in the end, we parted ways. It’s a bittersweet decision because we had worked so hard to get morning … Continue reading

Posted in Around the House, Megan's Blogs, Ramblings, The Nitty-Gritty | Tagged , , , , , , , , | Leave a comment

Rediscovering the Fire

Throughout the weekend, I saw the excitement and inspiration return to Barton’s eyes. He was on fire. He had found this space that encouraged and inspired him, pushed him further into new areas, redefining and introduced him to new skills, and a foundation and framework to work within. As one of the instructors said, he had come home. Continue reading

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Shifting Attitudes: Perspectives of Personal Assistants

Barton spoke with his personal assistant about his feelings, pretty openly, and amazingly, she was open enough to listen when he told her I wasn’t his mother, I was his wife. Continue reading

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Living in a Not So Perfect World

We’re continually amazed to see how sharing our story offers the space for others to open their eyes, overcome challenges and for many, lead to a place of healing. Continue reading

Posted in Ramblings, Speaking Engagements, The Nitty-Gritty | Tagged , , , , , , , | 1 Comment